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Understanding the lived experience of adult blood and marrow transplant patients in isolation via an art making task and verbal interview
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|Title: ||Understanding the lived experience of adult blood and marrow transplant patients in isolation via an art making task and verbal interview|
|Authors: ||Adcock, Carrie|
|Issue Date: ||6-Oct-2008|
|Abstract: ||Blood and marrow transplants are becoming more widely used to treat a variety of diseases. Because the number of individuals that are receiving transplants is expanding, it is important to increase knowledge of what the patients may experience. Two blood and marrow transplant patients in isolation consented to participate in the study. Both participants were female and were within the age range of 18 to 70.
Moustakas’ phenomenological research method was used to investigate the overall experience of the participants. Data collection consisted of two parts: non-verbal (an art making task) and verbal (an in-depth verbal interview).
The study found that adult blood and marrow transplant patients in isolation are challenged mentally and physically. The artwork of the participants was analyzed the common themes found were: isolation/loneliness, anxiety, confinement, depression, need for control, dependence, isolation of affect frustration, transplant. The transcribed interviews of the participants were analyzed. Revised themes of the participants’ experiences were as follows: transformation of self, feelings of invasion, anxieties about protective confinement, and loss of autonomy and acceptance of dependence.
Both patients were able to use the artwork as a non-verbal way of communicating their experience, as well as a reference tool during the verbal interview. The artwork appeared to be an effective tool to the patient to describe their experience. The findings of this study may be used as an educational tool for medical staff, mental health staff, and blood and marrow transplant patients. The findings may increase empathy and understanding for adult blood and marrow transplant patients in isolation. Finally, the results could encourage future research.|
|Appears in Collections:||Health Sciences Theses and Dissertations|
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